Monday, January 26, 2009

Duchenne Muscular Dystrophy Group on Facebook

My 10 year old grandson Owen has Duchennes. My daughter has formed a support group on Facebook. She started the group to raise awareness about Duchenne and to make a place where others with children or family members with Duchenne could support each other. We are so excited....Today her group reached a great milestone.... The group now has over 3500 members and is still growing. What an amazing show of support for families who are battling this disease everyday. If you are on Facebook and would like to show your support, please feel free to join. Lots of sharing of information, support and news.

Just click on here:
Duchenne Muscular Dystrophy=Show Your Support!!!

5 comments:

DEB said...

Leola, this is wonderful news! Thankfully, I don't have any relatives afflicted with this terrible disease, but we have had friends in the past who suffered with it. Support is so important!

Leola said...

Thanks Deb...It is wonderful news :)

Crafty Sue said...

I am not on facebook but I am happy to know so many have joined in the group.
I agree with Deb... Support is very important!

Hugs,
Sue.

Amber said...

Wow!! How great to start a support group and watch it grow!!! The next time I am on Facebook, I'll have to check it out!

Also, stop by, I have an award for you!

Betongvillan said...

Hello,

My name is Maria, I live in Sweden, My son, Zebastian is 5 years old and he has Duchenne

I found your blog, when I searched at google, on the word Duchenne.

Sorry my english is not so good,

I´m writing about my son at my log, www.betongvillan.blogspot.com

I have my e-mail there if your daughter wants to contact me, or you of course.. My mum is very good in english if you want to talk with someone in the same situation..

Hug´s from Maria ad my son Zebastian